My Story

In the week between her immunotherapy cycles, in collaboration with the dietician, we decided to do an experiment and see if completely removing Romy’s liquid

Romy and Zephyr love dogs and every day before bedtime they play a game called ‘doggy park’ where they pretend to be dogs, retrieving balls

The compassionate housing that the PPBF offer to families having treatment at Southampton General Hospital or the Princess Anne Hospital is truly a god send

Romy’s central line enters her chest and is tunnelled underneath her skin, and into one of the large veins in her heart, sitting in one

Granny and Grampy visited again for Christmas and on Christmas Eve after making Gingerbread reindeer we got some fresh air for the first time in

After evading it for 3 whole years, covid finally got us, and starting with Romy we all ended up catching it in the run up

For Romy’s second immunotherapy infusion she was attached to a balloon pump instead of a syringe driver, meaning she could be mobile.  Romy enjoyed showing

Romy enjoyed a princess party for her birthday.  We decorated crowns, and with Granny and Grampy visiting there were more than the usual 3 people

Romy’s Papa came to see us for the day.  Romy enjoyed opening her birthday presents and we all had a great time playing on the