My Story

Reaching the end of treatment brings with it a strange mix of emotions.  We feel sadness for the past, a deep sadness at everything that

Cousin Caitlyn turned one on the 10th June, so it was the first party that Romy and Zephyr had been invited to and been able

After restarting Ballet, we talked about starting Rainbows.  Romy didnt know anything about Rainbows but was really keen to try when we told her about

Romy had been eating really well for about 5 weeks, and no longer needed her Ng tube for feed, but we were still using the

Romy was super keen to start ballet again which first meant visiting her Teacher at home to get some new ballet shoes that fitted.  Both

We visited Vazon to watch the Liberation Day Cavalcade, then had a picnic in the car because the weather was a bit drizzly and we

We were tired and emotional from the journey back home and everything feeling so different, but we didnt want today to slip by without marking

On 5 May, exactly 18 months and 1 day after our horrendous journey to Southampton, we returned home.  We kept it very low key as

Normally, as having a Central Line removed falls low down on the priority list, and emergency cases continually bump them down the list further, it