My Story

Romy’s consultant confirmed that sadly Romy’s neuroblastoma is “high risk” as the scans revealed it had spread to spots on her knees and legs. This

Romy was injected with two lots of radioactive dye from nuclear medicine.  First for a kidney function test and then later she was injected with

Romy’s first blood transfusion, the first of many. Blood donors are literally life savers. -Helen

We had to travel to Royal South Hants Hospital in a taxi for a hearing test to use as a baseline to monitor any effects

Romy started her chemotherapy. As this is classed as “emergency chemotherapy” it goes ahead before the staging results, if the biopsy or other tests reveal

Romy’s first surgery to have her central line put in, a biopsy of the tumour and bone marrow sample. We were told we would have

Romy got to see some fireworks from her window but turned out to not be too interested in them.     3 attempts at getting a

After one night in the PEH we received news Southampton had a bed for us.  Romy did some colouring in the playroom on the Frossard