My Story

We took a rare visit to an indoor place, choosing a quiet time, we visited a Garden Centre to buy some decorations for Christmas.  We

As part of monitoring of the effects of all the chemotherapy Romy has had a lung function test and another audiology test. Helen & Tom

On 2nd November Romy was admitted to hospital again to start her first cycle of Anti GD2.  This infusion would run over 10 days and

Romy loves Halloween so we made sure to do lots of fun stuff today.  We painted the pumpkins that we got from the Pumpkin Farm,

We met Alice and her family, our friends from G4 ward, at a pumpkin farm to choose some pumpkins.  We also had some virtual Halloween

We managed to secure some last minute tickets to the Lion King show while it is in Southampton at the Mayflower Theatre, courtesy of a

On the 4th October Romy completed her Radiotherapy, put the final sticker on her sticker chart and was given a present by the wonderful radiotherapy

Nanna and Auntie Katy came to see us in London, we had a lovely walk through Regents Park and a visit to London Zoo.  Romy